[Solved] Tiring Disease Like Chronic

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I told a few of you and all of you probably in my intro that my husband has Multiple Sclerosis. He has been in pain for 20 years. This changes a person. Feeling a little better means his pain goes from a 5 or 6 to a 3, not that the pain goes away. He might be distracted from it. He lost the feeling in his legs from his knees down to his feet about 15 years ago. Have you ever had your foot fall asleep? Imagine that buzzing feeling for 24 hours a day. His only relief is sleep and he is medicated:(

I am not saying all this to have anyone feel sorry for him. I am telling you because I have a witness’s perspective on seeing a person in pain.

Check out https://invisibledisabilities.org/  Some of these ‘disabilities’ are not painful all the time, some are inconvenient (I’d say all?) and most are the sort of thing where people say “But you look so good” as if to DENY that you are sick right to your face.

The best example of how to explain a very tiring disease like chronic fatigue, lupus, MS, or heart disease is called the Spoon Theory. Have you heard of it?

Check out this link. It’s very effective.

https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

This theory deals more with fatigue than pain but add them together? One usually implicates the other.

Does spoon theory help you understand a person’s pain? Comments on the invisible disabilities’ website?